By age 30, most patients with FOP are completely unable to move. The average life expectancy of people with the disease is around 56 years. The most common cause of death is cardiorespiratory ...

It is an extremely rare disease that is estimated to affect around one in one million people. FOP is caused by a mutation in a gene known as ACVR1, which is involved in a cellular process that ...

Fibrodysplasia ossificans progressiva (FOP ... with the aim to improve the care for people living with this ultra-rare disease. And the study’s rich dataset will be a tool for years to come ...

The mystery surrounding a rare bone disease called fibrodysplasia ossificans progressiva (FOP) has been resolved following the identification of a mutant gene linked to the disease. The mystery ...

There are an estimated 400 people in the US living with FOP, a life-shortening disorder ... striking at the mechanism underlying the disease. The French drugmaker's head of R&D, Howard Mayer ...

Ipsen has suffered a setback in its marathon effort to bring palovarotene to market for ultra rare disease ... underlying FOP, which has only been diagnosed in around 900 people worldwide.