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Stone Man Syndrome Is A Rare Disease That Turns Muscles Into Bones
For patients with a rare genetic disorder that turns their muscles into bone, there is new hope. The disease is called fibrodysplasia ossificans progressiva (FOP), or "stone man syndrome.
Nature2y
Landmark study completed for ultra-rare bone-forming disease
Fibrodysplasia ossificans progressiva (FOP) is an ultra-rare genetic disorder that turns soft tissue to bone. A recently completed multi-year study will finally provide doctors the information ...
Medindia1y
Rare Bone Disease Traced To Faulty FOP Gene
The mystery surrounding a rare bone disease called fibrodysplasia ossificans progressiva (FOP) has been resolved following the identification of a mutant gene linked to the disease. The mystery ...
pharmaphorum3d
Ipsen's rare disease drug palovarotene knocked back in EU
Ipsen has suffered a setback in its marathon effort to bring palovarotene to market for ultra rare disease fibrodysplasia ossificans progressiva (FOP), after EU advisors recommended against approval.
pharmaphorum1y
Ipsen drug is first therapy for rare bone disease FOP in US
With FDA approval, Ipsen's marathon effort to bring palovarotene to market for the rare disease fibrodysplasia ossificans progressiva (FOP) has finally crossed the finish line in the US, after the ...